In many elementary schools in New Jersey, the children in kindergarten and first grade count the first 100 days of school (as they learn to count to 100). On the hundredth day, there is usually a celebration. I was reminded of this as I went to see Andrea today, because we are marking our one hundredth day in NICU/SCN. We didn't have a party like the kids in school, but we celebrated the milestone with gratitude that we made it this far.
Andrea had her blood transfusion last night, and is markedly better today. She is much more pink and she was awake and active after eating. She can't eat for 8 hours around a transfusion, so she spent a lot of today playing catch up. She ate 150 ml (5 ounces) at her 8 a.m. feeding! Her weight today was 2540 grams, or 5 pounds, 9.6 ounces. She gained 140 grams in 24 hours, despite being on a diuretic.
We will hopefully have more information about discharge on Monday. The team in on the weekend just covers the ward - I have to wait for the attending doctor to come back during the week. As always, I'll keep you posted.
“Patience is waiting. Not passively waiting. That is laziness. But to keep going when the going is hard and slow - that is patience.”